Effect of Hemoglobinopathies on Adolescent's Behaviour at Heredity Blood Diseases Center
DOI:
https://doi.org/10.22317/jcms.v9i5.1435Keywords:
Effect, Hemoglobinopathies, AdolescentsAbstract
Objectives: The objectives of the present study were to determine the effect of hemoglobinopathies disease on adolescent's behavior and to find the relationship between adolescent's socio-demographic characteristics and the effect of Hemoglobinopathies on Adolescent's Behavior.
Methods: Adolescents male and female with (beta thalassemia and sickle cell anemia) who were between the ages of 12 and 20 were the participants of a descriptive study. The research began on June 17, 2022, and lasted until November 15, 2022 to determine the effect of hemoglobinopathies disease on adolescent's behavior. A non-probability purposive sample of (105) adolescents was chosen at the Heredity Blood Diseases Center in Ibn Al Balady for children. and maternity. The information gathered between the 15th of July and the 15th of August 2022 using a built-in questionnaire and a direct interview method.
Results: The findings of this study show that hemoglobinopathies disease have a moderate to low effect on adolescents' behavior, with 53.3% of them are showing moderate and 41.9% are showing low.
Conclusions: The study conclusion that the behaviour was affected at moderate level. The results recommend offering adolescents with hemoglobinopathies an education program to enable self-management and provide them enough knowledge of the disease to avoid complications and make life plans.
References
Moussa, O., & Chen, R. W. (2021). Hemoglobinopathies: ocular manifestations in children and adolescents. Therapeutic Advances in Ophthalmology, 13, 25158414211022882. doi: 10.1177/25158414211022882. eCollection 2021 Jan-Dec.
Bertamino, M., Riccardi, F., Banov, L., Svahn, J., & Molinari, A. C. (2017). Hemophilia care in the pediatric age. Journal of clinical medicine, 6(5), 54.
Firoozi, M. (2017). Cognitive, emotional, and behavioral problems of children with hemophilia. Iranian Journal of Blood and Cancer, 9(3), 69-74.
Fasano, R. M., Meier, E. R., & Chonat, S. (2022). Sickle cell disease, thalassemia, and hereditary hemolytic anemias. Rossi's Principles of Transfusion Medicine, 326-345.
Hussein, M. T. (2022). Study of Blood Groups and Rhesus Factor in Beta Thalassemia Patients Undergoing Blood Transfusions. Sciences, 8(1), 1-5.
Mohssin, M. Y., Mahmood, A. E., Kamal, S. B., & Batah, E. H. (2015). Frequency distribution of hemoglobin variant and ABO blood groups among thalassemia patients from Ibn-Al-Baladi pediatric hospital in Baghdad/Iraq. W J Pharma Pharmaceut Sci, 4 (11),31-9.
Kuo, D. D. (2016). Genetic influences on adolescent behavior. Neuroscience & Biobehavioral Reviews, 198-205.
Uçaktürk, D. T. (2019). The Effects of Risk Behaviors and Orthorexic Behavior on Glycemic Control in Adolescents with Type 1 Diabetes. Journal of Clinical Research in Pediatric Endocrinology, 233.
Al-Allawi, N. A., Al-Doski, A. A., Markous, R. S., Amin, K. A. M., Eissa, A. A., Badi, A. I., ... & Hamamy, H. (2015). Premarital screening for hemoglobinopathies: experience of a single center in Kurdistan, Iraq. Public health genomics, 18(2), 97-103.
Breakey, V. R., Bouskill, V., Nguyen, C., Luca, S., Stinson, J. N., & Kohut, S. A. (2018). Online peer-to-peer mentoring support for youth with hemophilia: qualitative needs assessment. JMIR pediatrics and parenting ,1(2), e10958.
Mousavi, S. H., Dayer, M. S., Pourhaji, F., Delshad, M. H., & Mesbah-Namin, S. A. (2019). Determinants of Quality of Life in Children and Adolescents with Hemophilia in Kabul, Afghanistan. Archives of Iranian medicine, 22(7), 384-389.
Dsouza, A., Nayak, D., Kurien, A., Pai, M. S., & Nayak, B. S. (2020). Description of health-related quality of life of children and adolescents with hemophilia from India. 19(3), 12-16.
Shareef, S., & Obaid, K. (2015). Assessment of Knowledge of Adolescents with Thalassemia Major Regarding Iron Chelating Therapy. International Journal of Science and Research (IJSR), 6(11), 625-627.
Badr, S. H., & Hasan, A. M. A. (2022). Impact of hemoglobinopathies upon behaviors of adolescents. International Journal of Health Sciences, 6(S4), 5450–5456. https://doi.org/10.53730/ijhs.v6nS4.9301.
Von Hohendorff, J., Couto, M. C. P. D. P., & Prati, L. E. (2013). Social skills in adolescence: Psychopathology and sociodemographic variables. Estudos de Psicologia (Campinas), 30(2), 151-160.
Basu, M. (2015). Astudy on Knowledge Attitude and Practice about Thalassemia among General populationIn outpatient department at Atertiery care hospital of kolkara. Journal of Preventive Medicine and Holistic health.1(1),6-13.
Hosokawa, R., & Katsura, T. (2018). Effect of socioeconomic status on behavioral problems from preschool to early elementary school–A Japanese longitudinal study. PLoS one, 13(5), e01
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2023 Journal of Contemporary Medical Sciences
This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.
